Going Home!

Great news from Texas! We are going home with Trey today! We are so excited. Now that the doctor's identified his disease, the treatment has made his white blood cell count go down to 22,000 in 48 hours. The doctor was very clear that Trey is still not well. We can just continue his treatment at home. We will be seeing another doctor at Dallas Children's as soon as their is a new appointment. Our doctor also said that Trey will probably qualify for some studies and he recommends that we participate. I guess Still's disease is pretty rare, only 1 out of every 100,000 have the disease. We are just so relieved to have a diagnosis and to get going home! We will keep you updated on his progress!

Trey Update

Well, we are still at the hospital with Trey. His white blood cells up again to 50,000. It seemed like he had to have a major infection some where in his body, but he doesn’t. His body is fighting it’s self. His infectious disease specialist has gotten consults from several other pediatric specialists. We had good news that his bone marrow test proved that he did not have leukemia. His doctor’s have changed their diagnosis to Systemic Juvenile Rheumatoid Arthritis (Still’s disease). His fever was 107 on Friday night and then he didn’t have a fever at all last night. He had his best day since his illness today. His contact isolation was lifted, so we took him for a wagon ride and his appetite has begun to increase. We are crossing our fingers for two more fever free nights and then we may be able to go home! We appreciate everything that you all have done for us and especially for your prayers.

Trey

Our youngest son, Trey, has been in the hospital since December 5th. He has bacterial pyomyositis, which is an infection in his muscles. He is on some of the strongest antibiotics that they have available. We think he got it from the case of Strep throat that the whole family got a little bit ago. He was in a lot of pain, but we have been able to minimize his discomfort with pain meds. We will be in the hospital at least until the 14th. I am spending one night at home so that I can get some sleep. I am a walking zombie, but it is really hard to be away from him. We appreciate all of your prayers and support. We will let you know when we get home. One small highlight of the hospital stay was a visit from some Dallas Cowboys. We got to meet Greg Ellis, and another one. They were so big! They brought Trey a stocking, which was a real lineman's sock. It was so kind of them to visit the sick children.

Trey's Look-alike-Meter